Perhaps the most important element to instructing patients and answering their questions effectively is primarily to consider yourself to be a teacher and fundamentally interested in education in the broadest sense of the word. This does not mean “filling up” patients with so-called facts or pieces of medical information. Rather, it literally means “leading forth.” The goal is to help the individual control his or her life in a way that will most likely lead to what that particular patient wants to achieve.
TIP NO. 1. BELIEVE EVERYTHING
THE PATIENT SAYS
The words may be inappropriate, or even wrong, but
underneath them will be a fundamental truth that the
patient is trying to convey. It is your responsibility as a
physician to translate those words so that you can understand
that message. Moreover, you need to respond to
the patient in ways that address that core issue with all
the aspects of successful communication (body language,
touching, speaking) that are meaningful to the patient.
TIP NO. 2. BE HONEST
It is possible to be completely honest without being
cruel. Lying is almost always disrespectful and arrogant. A
truth can be a lie, an intent to deceive. One of the most
venal types of lying occurs when you fool yourself at the
same time you are trying to fool the patient.
TIP NO. 3. SPEAK IN TERMS
THE PATIENT CAN FULLY UNDERSTAND
Never use abbreviations or jargon. It is deeply disturbing for
a patient to hear physicians speaking to each other about the
patient's CRVO, his or her decreased MD, or the CME in the
OD. Language like the pressure inside your eye or your eye pressure
is far more accessible to patients than the term intraocular
pressure. After you have said something to them, ask
patients what they understood you to say. You will be
shocked. You may think you were clear, but they heard something
totally different from what you had in mind. Recognize
these situations as opportunities to clarify your comments
and to engage the patient more fully. You can come to understand
the patient better and to have him or her understand
you better so that, at the end of the conversation, he or
she senses progress in being able to control his or her life.
A routine part of communicating meaningfully with patients is asking, “What does X mean to you?” and “What did you understand that I just said?”
TIP NO. 4. MAINTAIN HOPE
Try to avoid phrases such as Unfortunately … or I am
sorry to tell you … . Just saying “unfortunately” will turn off
the patient's ability to hear. State the facts in a way that
they are understandable but phrased so as to maintain
hope, because there is always hope. It is always possible to
do something that will make the patient's life better.
TIP NO. 5. DO NOT CONFUSE THE PATIENT
WITH HIS OR HER CONDITION
Do not say, “You are worse.” Rather say, “Your visual
field has gotten worse in your right eye.”
TIP NO. 6. CONSIDER THE FUTURE
Think in terms of a video, not a snapshot. No treatment
of any kind is justified unless you know that, without
the treatment, the patient will experience a decrease
in quality of life or develop some type of disability. If you
cannot be sure of that, then there is no justification for
starting the treatment, because every treatment causes
problems. With that in mind, then, it is easy to say, “I am
starting this drop because, without it, I believe that you
are going to have a decrease in your ability to X (drive,
read, play tennis, whatever is important to the patient).”
TIP NO. 7. USE YOUR WORDS AND
GESTURES TO INSTRUCT PATIENTS
For example, if you have measured the IOP and say in
a definitive, authoritative tone, “Your eye pressure is 15,”
the patient will conclude that you really know that the
pressure is 15. In actuality, of course, you do not know
the IOP is 15 mm Hg. Furthermore, the pressure could
easily have been 10 or 20 mm Hg 1 hour earlier or could
be 10 or 30 mm Hg that evening. If instead you say
something like, “As I measure your eye pressure just
now, it is somewhere around 15,” you are instructing the
patient in the difficulty of determining exactly what IOP
a person has.
When you look at the second visual field and say, “Your visual field is worse. You had 4 dB of loss last time, and you have 8 this time,” the patient concludes that it is twice “as bad” as it was before. Of course, that is nonsense. A field change from 4 to 8 dB may not even be significant. Indicating to patients the softness of all these values is a critically important part of educating them. Everything you do or say teaches patients in some way.
TIP NO. 8. REMEMBER THAT YOUR FINAL
COMMENTS WILL REMAIN WITH PATIENTS
FOR MONTHS OR YEARS
Consider a patient who underwent a guarded filtration
procedure 3 months ago. At this visit, you note that his or
her visual acuity is one line worse. The eye exhibits mild
bleb dysesthesia, but the IOP is around 12 mm Hg (which
is where you wanted it). Your parting statement to the
patient could be, “I am sorry your eye is so uncomfortable
and that your vision is worse. Let's hope it clears up.
It is important that I see you again in 6 months.” That
patient will leave discouraged and will feel apprehensive
for the entire 6 months.
Instead, your final remarks to this patient could be, “I am very pleased with the result of the surgery. I know that you now have mild irritation, but I also know that you can tolerate it. When your eye feels irritated, blink several times, and that will almost certainly make the eye feel better. Your sight is still excellent, and the likelihood is great that you will keep your vision for the rest of your life.” As you say these words, you hold the patient's hand and look him or her directly in the eye, because you are genuinely pleased. You add, “I am eager to see you again in 6 months. You are a real inspiration to me.”
George L. Spaeth, MD, is emeritus director of the William and Anna Goldberg Glaucoma Service and Research Laboratories at the Wills Eye Institute in Philadelphia. Dr. Spaeth may be reached at (215) 928-3960; gspaeth@willseye.org.
